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The goal of spasticity treatment is managing symptoms, since there is currently no cure for the condition. The earlier your child is evaluated, the better, so that treatment can begin sooner and hopefully avoid the need for surgery later.
We review all possible treatments available and draw on those that are most likely to help your child. As time goes on, we may modify the treatments through the feedback that you and your child give us.
Therapy is the first line of defense in diminishing muscle stiffness. Physical therapists (PTs) and occupational therapists (OTs) evaluate your child and recommend exercises that can help improve walking and activities of daily living such as getting dressed, eating, and using the toilet.
Various anti-spasmodic medications may help diminish spasticity. Some are taken orally, others injected. They all need careful monitoring because they can sometimes affect all muscles, not just the spastic ones, resulting in overall body weakness.
Spastic muscles can pull bones out of alignment because while bones continue to grow, the muscles may not. These conditions can be corrected by surgery. Typical surgeries include:
Neurosurgeons at Lucile Packard Children’s Hospital Stanford have helped many children with the selective dorsal rhizotomy (SDR) procedure, often with dramatic improvement, especially in younger children and those with lower-limb spasticity.
Not all children are candidates for SDR, so consider this option carefully with advice and input from your care team.
Some children find that baclofen injections make them too drowsy. For some of them, a baclofen pump may be implanted so that the baclofen can be delivered directly into the spinal fluid. The neurosurgeon will test the right amount of baclofen to administer through the pump to be sure it provides the best possible outcome. The pump needs to be refilled every four to six months, depending on the size of the pump and the dose needed.
A novel treatment known as (DBS) uses computer technology to locate the areas of the brain that are misfiring and then modify those areas with impulses from an implanted electronic device.
DBS was developed for adults about 20 years ago. In the past decade, it’s been in use for children with movement disorders including spasticity. As with other surgeries, not all children will respond to this procedure, so you and your team will carefully analyze all available data to determine if DBS might benefit your child.
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