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Contact us to learn more about our Pediatric Epidermolysis Bullosa Clinic or to schedule an appointment.
Lucile Packard Children's Hospital Stanford provides the expert multidisciplinary care necessary to address the complex needs of children with epidermolysis bullosa. Epidermolysis bullosa is a disease that causes extreme skin fragility, leading to recurrent blister growth.
Our Pediatric Epidermolysis Bullosa Clinic is staffed by a team of doctors and expert providers in the care of this rare genetic skin disorder. It is a severe condition that requires ongoing, focused treatment. Our experts educate you and your child about the disease, offer support and guidance, and work together with you to develop a comprehensive plan for the care and management of your child’s condition.
Our doctors are well-known nationwide for creating new, exciting treatments for children with incurable diseases, including complex and rare skin conditions. Our team pioneered a gene therapy that can heal painful, open wounds in children with epidermolysis bullosa, empowering them to live better, more enjoyable lives. It received FDA approval in 2025.Ìý
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